Archive for June, 2014

too much

There is way too much to post since my last post over six months ago!!!!! And there is too much going on in my life! So I will make a list of things that have happened over the last six months (good and bad):

1. Max had his finger crushed in our bathroom door (and almost severed) in November… had to have surgery and subsequent hand therapy

2. Gabe has grown almost 4 inches while on growth hormone 🙂

3. Nate was on an amazing basketball team over the winter and is a great player; and scored 2 goals in soccer on Sunday

4. Max turned 14, became a member of the national junior honor society, went to an 8th grade dance last week; and is going to high school next year!!!!

5. Gabe’s 504 has been violated at least 6 times this school year!!! We have a meeting about it tomorrow

6. The boys’ 95 year old great grandma fell and broke her hip and is in a rehab facility and I am the main person “in charge” of her care

7.  My dad had a mini stroke and had major surgery because his carotid artery was 90% blocked, but is doing well right now

8.  All three boys had a great school year academically and are all finishing up on a high note

9. I figured out that we went to at least 70 specialty appointments last year and spent over $20,000 of our own money on medical care

10. I joined the Board of Trustees of the PKD Foundation and went to my first board meeting

11. A sweet baby boy named Leo passed away from ARPKD… a family I had been in contact with for his way too short life:(

12. I have met two new families in NYC who have baby boys with ARPKD

13. I started a jewelry business making jewelry out of vintage typewriter keys

14. I turned 43…. gah!!!!!

15. Next week I am going to the PKD National Convention in Kansas City and will be a speaker there

16. I was honored at the Harvard club for my volunteer efforts with the PKDF

17. I started teaching 3rd grade Sunday school at our temple and loved it!

18. I will end on a good note…. I feel blessed every day and thankful to wake up each morning and have my three sweet boys in my life



June 10, 2014 at 4:24 pm Leave a comment

June 2014
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