One down

May 8, 2012 at 9:26 am 1 comment

Cardiology went well yesterday!! Two clear EKGs, two good echocardiograms, and two good blood pressure readings. $80 dollars for copays but worth the relief of knowing no enlarged left ventricles.

Today we have urology! Last week was orthopedist that went well. Next week dermatology. Then July for endocrinology. Do we have June free of specialists??? That would be amazing!


Entry filed under: Uncategorized.

Humbled Third time

1 Comment Add your own

  • 1. Holly  |  May 17, 2012 at 2:35 pm

    I am a grandmother of an ARPKD baby. Our little Jayden will be 6 months in June and we are looking forward to that day. I read your blog and I smile when I see the picture of your boys. It truly gives me hope. My daughter whom gave birth to our lil Jaybyrd is only 18 and I must say she is an amazing little mama and I am very proud of her. They are both fighters without a doubt. The sleepless nights in NICU and the moments of prayer. I agree with you do not ever give up and fight with all you have inside of you for they will fight for YOU …. I hope this finds you and your family well. Has he had a transplant at this point? I am happy to say after Jaydens appt today her kidneys are not inlarged and she weighs 13 lbs and 1 oz and is 24 inches long. Amen!! Just wanted to let you know your story made me smile and gives me hope 🙂 I hope yall have a wonderful day.


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