Big words

March 21, 2012 at 2:39 pm 2 comments

Max has been complaining of knee pain for a few weeks now. Of course he didn’t tell me right away but once he did I decided to take him to an orthopedist. In the last week or so he was slowing down while running and even limping on occasion. On Monday we went to the orthopedist who immediately diagnosed… are you ready for this….. Sinding Larson Johannson Disease. Now that is a mouthfoul!!!!  A syndrome to go along with his kidney disease. So now he has ARPKD/CHF, high b/p, and SLJD. Plus asthma but that doesn’t have any fun letters to go along with it!

In actuality Sinding Larson….. is just tendinitis of the knees. And it is very common in boys between the ages of 10-15 who are going through a rapid growth spurt and play a lot of sports. The ortho explained it is the tendon below the kneecap being stretched too much because he is growing and playing too hard. So he needs physical therapy (PT – more letters) 2-3 times a week for 6 weeks. 

In the scheme of things all not a big deal, except now we are adding another specialist to our list, more appointments, and more $40 copays!!!!!  

When I told my friend Julia she asked if we were competing with her for more syndromes!!!  Ha! Max also has the missing teeth and my family has these weird “ear pits”. So I think we might win with the obscure things!! Sometimes I just have to joke about it all because otherwise my brain would erupt!


Entry filed under: Uncategorized.

Not compatible with life Finally Friday

2 Comments Add your own

  • 1. Julia Cowan Roberts  |  March 23, 2012 at 12:07 am

    Well, I don’t know…we do have the brain thing and each kids share an eye disorder and each have one of their own! But ear pits, hard to compete with that…it’s true.

  • 2. threepeas  |  March 26, 2012 at 9:51 pm

    Ear pits and missing teeth. Don’t forget that:)


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