Hard week

February 4, 2011 at 10:11 pm 2 comments

I’m having a hard week. I’m not sure it is something specific but I know the news of these babies who have died from ARPKD has made me sad. I think I’m also overwhelmed with the boys appointments. Max has been having a lot of headaches over the last few months and I have been procrastinating calling the pediatrician because I kept saying they were sinus headaches and had so many other appointments to think about. I finally called today and she wants me to take Max to a neurologist. I’m sure it will be fine but it’s just one more thing for me to worry about and one more appointment for me to go to. I’m also not sure if I wrote here that we started taking Nate to a child psychologist. It’s weird that I felt unsure of if I should write that here. It has been so easy for me to write about all of the other appointments we go to, but it is such a social stigma in our culture to go to a psychologist and I think I feel judged about it. I know those are my own issues but I just had a hard time writing about it. But then again I feel like if I can write about it and be open about it then maybe it can help another family struggling with something with their child. The thing is that I feel like Nate is not always happy and it’s hard for him to be the middle child between two brothers who have a kidney disease. I think it is probably hard for him to be the healthy one.

So now I get to add neurologist to my “ology” list!!!  And psychologist too! But I think I already had that one because I see a therapist…… ahhhh…. so many appointments…… so many doctors…… so many “ologists”…….too much stress. Why can’t it just be easy for everyone. Really. Why can’t life be easy and not so stressful and happy and healthy all the time. Is that asking for too much??

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Entry filed under: Uncategorized.

Sad news again Again

2 Comments Add your own

  • 1. Julia Roberts  |  February 4, 2011 at 11:11 pm

    I know how all of that feels…all the docs to watch and keep track of. It seems overwhelming because it IS overwhelming, but you can handle it because it’s what you do. Hugs to you…

    Reply
  • 2. Alison  |  February 5, 2011 at 4:51 pm

    Hi were the same Mias got epilepsy as well as ARPKD and stomach migranes. Just before Christmas she had 14 appointments in 10 weeks, most of which were private drs i had to pay for. Lucky i have a great boss who let me work extra leading up to it so I could afford time off and the bills. Then they wanted to add pshycolgist and a neuro phyic so were doing that now. I find the appointments very draining going thru the whole story every time and hearing the oh she looks so healthy stuff. Ive got out a lot of the follow ups with the specialists in favour of our ped who seams to manage everything, we pay for him but its worth it.
    I do find myself upset when people with healthy kids complain about sitting at the drs for an hour cause their kid has a cold or something simple thu.
    Alison

    Reply

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