Ologists

July 31, 2010 at 10:11 pm Leave a comment

Our journey began with the gynecologist. Who knew at this point we would have seen so many doctors. Here’s a list:

Gynecologist

Perinatologist

Anesthesiologist

Neonatologist

Nephrologist

Urologist

Hepatologist

Pulmonologist

Endocrinologist

Cardiologist

Dermatologist

Audiologist

Otolaryngologist

Ophthalmologist

Radiologist

Gabriel alone started with one neonatologist at the first hospital, then saw a second one at the second NICU; then saw the first nephrologist who sucked, and then sees our current one; had to see an ophthalmologist because he was 6 weeks early; had to see a cardiologist first because of his heart murmur and then because of his high blood pressure; had to go to an audiologist because he wasn’t talking to check his hearing; went to a endocrinologist because he is not growing who told me to feed him cheetos so now has to get a second opinion from another one; saw a urologist just to make sure his excess urine was only the ARPKD and not anything else; saw an otolaryngologist because of his bloody noses; sees the hepatologist at NIH because of his CHF (liver issue). That’s ten different doctors for Gabe and more than one appointment with most of them.  Max has been to 3 urologists: the first one was before the ARPKD diagnosis because he had a meatal stenosis (look that one up!!), the second one was to make sure his excess urine wasn’t from anything besides ARPKD (before Gabe’s appt) and he was the worst and then finally the third one who I took Gabe to who sadly passed away in a car accident last month. Max has also seen an audiologist, an otolaryngologist, the hepatologist, a nephrologist, a dermatologist (had to have a mole removed from his ear last year), and will be seeing a pulmonologist in 2 weeks because there were some issues with a pulmonary function test he did at the NIH. That’s 9 for Max. Wow. Those are a lot of appointments, a lot of specialists, and a lot of copays!!! Plus the pediatrician for both of them who for some reason doesn’t have ologist on their title.

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