Sad

June 27, 2010 at 9:30 pm Leave a comment

Another ARPKD baby was born on Friday who the doctors say will not make it. Sometimes we don’t hear about babies for a few months and sometimes we hear about a lot all at once. It’s just so sad. I cannot put into words my feelings about this but cried when I read their blog before. I just don’t understand this disease. I don’t understand why some babies die and some don’t. We are the lucky ones dealing with ARPKD. Doesn’t that sound ironic? We are lucky……. but we are compared to what could have happened to us. I’m thinking about this family fighting for their baby right now and for the other family who just lost their baby to ARPKD and to all of the families who have lost babies to ARPKD.

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“normal” kid stuff Monday Memories

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