Sad Story

November 23, 2009 at 12:40 pm Leave a comment

I read a really sad story recently about a baby who died from ARPKD. It really upset me. He was born with huge kidneys that were not functioning but actually only needed to be on a ventilator for a couple of days.  He then started breathing on his own. The doctors felt there was nothing they could do for him and did not feel dialysis would work on a baby that small. So they told the family to take him home and let him die.  He lived for seven weeks at home until his kidneys failed and he died.  That is such a sad story for me.  I know so many babies in the same position that were put on dialysis and did survive until they needed a transplant.  I think the parents did all they could given the information from the doctors but I don’t understand how the doctors could have made this decision.

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