November 20, 2009 at 4:46 pm 1 comment

I’m frustrated I didn’t post yesterday but my friend, J, says I need to get past that!! But really I’m frustrated I don’t have Gabe’s stool sample results back yet. The nurse yesterday said they were not back yet. Today when I called they were back but the doctor has not reviewed them and will not be in until Tuesday. The nurse said to her they look okay but the doctor needs to look at them. She then said to me “is he still symptomatic”. What did she think that we really didn’t have that big of an issue that resolved itself but we decided to do a 72 hour stool sample anyway.  I am so frustrated. I kept saying that to her. I asked her to fax the results to me but she wouldn’t since the doctor hasn’t seen them yet.  I am such an immediate gratification kind of person and hate waiting for things, especially test results. I have a feeling we are going to be back at square one and I am going to be even more frustrated. Frustrated that the nephrologist won’t blame Gabe’s chronic kidney disease as the reason why he is not gaining weight and frustrated that the GI doctor doesn’t know why either.  And really just frustrated that Gabe isn’t gaining weight.


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ARPKD Angels Tired

1 Comment Add your own

  • 1. Jennifer  |  November 21, 2009 at 11:20 am

    I don’t know why a nephrologist will not say that the lack of growing is from kidney problems because my sixteen year old has chronic kidney problems and the doctors told me when he was a baby that it would stunt his growth. He has always been in the 5% or lower for weight and height. At sixteen he barely weighs over 100 lbs.


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