ARPKD Angels

November 18, 2009 at 9:17 pm 1 comment

The wonderful moms I have spoken about on a few occasions who have all lost babies to ARPKD and started an ARPKD angels group on facebook have also started a website. ( http://arpkdangels.webs.com/) Their title says:

“Support for families who have lost a child or those who have received a neonatal diagnosis”

These women continually amaze me with their courage to talk about what they have been through and the strength they offer other parents.  And mostly their honesty of what it is like to lose a child.  I wish I wouldn’t have to refer new moms there but I know I will in the future because unfortunately there is still not a cure or a treatment for ARPKD and so many babies and older children as well continue to die from it.

Advertisements

Entry filed under: Uncategorized.

American Education Week Frustrated

1 Comment Add your own

  • 1. Julia  |  November 18, 2009 at 9:28 pm

    They are amazing…

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Trackback this post  |  Subscribe to the comments via RSS Feed


November 2009
M T W T F S S
« Oct   Dec »
 1
2345678
9101112131415
16171819202122
23242526272829
30  

%d bloggers like this: