He doesn’t look sick

November 1, 2009 at 10:51 pm 3 comments

Can you believe someone actually had the nerve to say that to me  about Gabe who knows all about ARPKD and has a special needs child? There are some really interesting people out there. And some really “not bright” ones as well! I wanted to say something else there but thought it would be wrong of me.  But really. He doesn’t look sick. And of course how do you respond to that one.  I had all of these wonderful responses afterwards but at the time just laughed it off.  Matt was sitting right there and didn’t even realize she was talking about his ARPKD because really who says things like that. But honestly a lot of people do comment on that. On the outside the boys look great but their kidneys must look like crap!  Not to mention their livers and spleens!  Ugh. Come on!!!


Entry filed under: Uncategorized.

Downer NaBloPoMo

3 Comments Add your own

  • 1. Jennifer  |  November 2, 2009 at 12:01 pm

    Does ARPKD affect the liver and spleen also?
    My son was diagnosed with PKD but most of his problems are with his liver which is causing all kinds of problems including with his spleen.
    He was just diagnosed in August after month of testing because his platelets and white blood cell counts were off.

  • 2. threepeas  |  November 2, 2009 at 4:22 pm

    Yes all children with ARPKD have some degree of CHF, Congenital Hepatic Fibrosis, which causes scarring on the liver and an enlarged spleen.

    • 3. Jennifer  |  November 2, 2009 at 7:28 pm

      I was not aware.
      They said that my son has scarring in his liver that has caused an enlarged spleen, hypersplenism, portal hypertension, and varices.


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