October 29, 2009 at 8:27 am 1 comment

I forgot to mention how awesome the ARPKD webinar was the other day!!  The PKD Foundation sponsored this educational ARPKD webinar given by Dr. Guay-Woodford, who is the guru in the field of ARPKD. And not only is she the guru but she’s the best!!  She really knows her stuff, plus she is so smart, and just really nice on top of that. And is a very amazing speaker. So besides being so excited that the PKD Foundation is now doing a series of ARPKD webinars I am also so excited that Dr G-W is one of the doctors doing them! We (the foundation) are lucky to have her!!!! What really makes it exciting is knowing that in part these webinars are happening because there are so many ARPKD families out there who raise money for the walk which funds things like this, plus research in ARPKD.  I know in 2008 we raised over $200,000 and I’m not sure on our numbers for this year but it was already well over $100,000 in the beginning of September, which was before many of the walks happened! In case you are reading this and were not able to log on for the Webinar it is on the PKD Foundation’s website!! So… even though I wish we didn’t have this disease I am grateful for the Foundation and for doctors like Dr. G-W who tirelessly give their time and themselves to help our children.


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Celiac Disease Downer

1 Comment Add your own

  • 1. Julia  |  October 30, 2009 at 1:43 am

    It was awesome. And I know that if we have to be in this fight we are better off with her in it with us.


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