Archive for February 13, 2009


This kitchen project is either go to put me over the edge, put Matt over the edge, or cause one of us to file for divorce (just kidding on that one).  Over the years of our marriage Matt has joked that we are jinxed. Most of the things are just minor things and then there’s the whole cancer thing in his family and the whole ARPKD thing.  A few years ago we were going to Jackson Hole for a wedding and our entire trip there was jinxed. Our first flight was canceled due to weather which caused us to miss a connection which caused us to be a day late getting there. Then we had to fly into Salt Lake and drive from there. Then on the drive in a mustang convertible with the top down but windows up (we thought it would be fun to rent that kind of car) a rock blew up and shattered Matt’s entire window.  Luckily no one was hurt. We laughed about it and just said how we were jinxed!  A couple of years ago we were going to Palm Springs to see my parents and all of our flights were delayed again b/c of weather and then the flight into Laguardia was so bumpy that Max, Nate, and Matt all threw up.  Last week we were at the Bronx Botanical Gardens seeing a train show and walking around outside and Gabe fell….right into throw up. It was pretty disgusting!!  My fear was more that he would get sick from it but so far so good. The thing is Matt thinks we are jinxed. 

Now with this kitchen project it has been a long slow go of it.  We are now into our 16th week of working on it. Really just little things have gone wrong or different from the plan but they add up: the microwave didn’t fit where it was supposed to go and the cabinet maker had to remake the cabinet above where the microwave will go, the microwave had a huge dent in the back of it when we took it out of the box, the stove has a scratch on the front of it, the whole project is costing a lot more than expected (like over $20,000 more), we need a new furnace that costs $14,000, the architect yelled at me and told me I was unreasonable, it’s taking about double the amount of time we thought it would take, we had a gas leak and the gas company had to dig up the street in front of our house to fix it (luckily it was free), we had a water main leak and we had to dig up our whole front yard to fix it (not free – about $7,000), and a few other minor things.  Matt thinks all of these things happened because we are jinxed. I’m not so sure about that.  

But today we got a call from American Airlines that our first flight for tomorrow morning was cancelled going from Laguardia to Dallas and therefore we would miss our connection to Palm Springs. And oh, yeah there is nothing they can do for us. After many phone calls from myself, Matt’s travel person at work, and the infamous Toby Weinberg (my mom) we are now flying to San Francisco at 9 am tomorrow, have a 5 hour lay over there, and then on to Palm Springs. Jinxed??? Hmm. It is Friday the 13th.


February 13, 2009 at 5:32 pm Leave a comment


There are really some amazing blogs out there and amazing people who write them. I sometimes wonder if maybe mine is too much of  a bitch fest. I would love to be that positive person who has a really inspirational blog that others can look to for support, but I’m not sure I really have that in me! But someone did tell me recently they found my blog and emailed me with questions about ARPKD. And you know I’m all about raising awareness of this disease. If I can educate one person who will tell one OB who will then give their patient hope that would be enough!  

I’ve been reading this blog about a husband and wife who were in a plane crash last August. The wife had a blog prior to the crash that had a ton of followers. She was burned on over 80% of her body and has a really rough recovery ahead of her.  But she and her family are amazingly optimistic and positive. And have a very strong faith in G-d.  I do believe in G-d and my religion but am not sure it comforts me as it does to others.  I wish it did! This week I came across another blog about a man whose wife died one day after giving birth to their daughter. He is also so positive and has an inspirational blog.  It is amazing how some people handle various hardships in their lives. It is also amazing to me how cruel this life can be and how some really bad things happen to some really good people.  These blogs have inspired me to “try” to be more positive for my boys and not to feel so sorry for myself!

I’ve been avoiding doing much for the PKD Foundation recently and need to get back into that. I am actually in the process of forming a loss support group for mothers who have lost children to ARPKD. Ironically I am in touch with about 6 mothers who live in my area. How crazy is that? I am looking to have this group at my house in March or April. I hope it helps them.

February 13, 2009 at 10:40 am Leave a comment

February 2009
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