About
My name is Michele and I live in NY with my husband, Matt, and three boys: Max, Nate, and Gabe. Max is 8 and just finished second grade. Nate is almost 5 and will be in kindergarten in September. And Gabe is 2 and will go to nursery school three mornings a week in the fall.
Max and Gabe were diagnosed with ARPKD (Autosomal Recessive Polycystic Kidney Disease) two years ago. This has really changed the way we thought things would go in our life. ARPKD (www.pkdcure.org) is a genetic condition that affects their kidneys and will ultimately lead to the need for a kidney transplant. Right now both boys are doing well with the exception of having high blood pressure that they both take medicine for on a daily basis.
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Javier | October 27, 2009 at 6:45 pm
We are parents of two children aged sixteen and fourteen affected ARPKD. We live in Madrid (Spain). Our children have not yet been transplanted. They lead a normal life with medication and medical checks every three months. I do not understand much English but will now visit your blog. A greeting